Our daughter Jane died from SUDEP & possibly from ours and her ignorance. Nearly half of all SUDEP deaths are avoidable. Stay Alive - Read On.

Monday, 16 April 2012

I wish there was one of these for bereaved families

A great initiative for people living with epilepsy in London is taking place in May..  This is an arts workshop at the Out Side In Centre for Drama Therapy and Therapeutic Theatre.  Having just been to the London Sudep conference (which I still intend to blog about) where we met, amongst others, another family who also lost their child one year on.  Strangely at this event I felt largely unemotional, even though we were wearing our special ForJane T-shirts.  Others were more emotional and for good reason.

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