Our daughter Jane died from SUDEP & possibly from ours and her ignorance. Nearly half of all SUDEP deaths are avoidable. Stay Alive - Read On.

Thursday, 12 April 2012

ForJane Family Forum

I feel there would be a great benefit for families affected by SUDEP to talk to each other.  There are lots of forums out there, so why create another?  My thinking is there is nowhere focused exactly on parents, siblings and others to talk to each other, out of the gaze of those non-bereaved.  I feel there is no exact place where we can share best practice on raising awareness, fundraising best practice.

So as a place NOT to grieve but to ACT I have created a Yahoo Group called Sudep Families.  Read more & join at SudepFamilyForum.

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