Our daughter Jane died from SUDEP & possibly from ours and her ignorance. Nearly half of all SUDEP deaths are avoidable. Stay Alive - Read On.

Saturday, 17 March 2012

Getting SUDEP into perspective

Whilst browsing the web I came across the MedicineNet definition of SUDEP.  Not a bad article and it does make some useful points.
  1. Any epileptic fit carries a risk of death. Perhaps a small risk but one nevertheless, and of course everyone's risk is different.
  2. People with Epilepsy should be concerned about SUDEP. No-one should panic about SUDEP.  The risk is small, but it is there.
  3. When did you last have a check-up? When having a review make sure you get to know what kind of fit your have.  Not all fits are the same. Knowing that your fits can inform you a lot about your risk of SUDEP.  Video monitoring of your fits is a major tool to help determing your types of fit.
  4. Make sure you take your meds reliably and regularly.  It is no good taking Anti-Epileptic Drigs "as needed".  Effective protection is only built up by taking them daily as prescribed.  Nothing less will do.

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